Projects of the TBINDC Registry by Researchers Last Name
Mortality and Life Expectancy After TBI Rehabilitation
Abstract: Abstract from Project Phase I - Objective: To investigate mortality, life expectancy, risk factors for death, and causes of death in individuals with traumatic brain injury (TBI). Methods: Retrospective cohort study utilizing data from the TBI Model Systems National Database, the Social Security Death Index and death certificates. Participants: 2,178 individuals with TBI completing inpatient rehabilitation in one of 15 National Institute on Disability and Rehabilitation Research-funded TBI Model Systems of care between 1988 and 2001. Results: Individuals with TBI were twice as likely to die compared to individuals in the general population of similar age, gender and race, resulting in an estimated average life expectancy reduction of 7... more
Investigators: Harrison-Felix C, Whiteneck G, Devivo M, Hammond F, Jha A view full
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Lead Center: Craig Hospital
Collaborating Centers: Carolinas Rehabilitation, Emory University/Shepherd Center, Mayo Medical Center, Ohio State University, University of Alabama, Oregon Health Sciences University, University of Missouri, Moss Rehabilitation Research Institute, Rehabilitation Institute of Michigan, Spaulding Rehabilitation Hospital, Virginia Commonwealth University/Medical College of Virginia, Santa Clara Valley Medical Center, University of Washington
Early Interventions to Preserve Viable Employment Options
Abstract: The ability to return to a previous job has been shown to be a key predictor of job success following traumatic brain injury (TBI); however this outcome is relatively rare. Although many TBI survivors do appear to have jobs waiting for them, early intervention is crucial for their success, even if actual return to work was not planned until much later. Craig Hospital uses an intervention-consultation approach in which rehabilitation specialists provide individualized consultation to help employers and design customized work reintegration plans with gradual buildup of expectations, endurance and complexity. The study hypothesis was that a work reintegration program focusing on early intervention, a return to preinjury employment, and an... more
Investigators: McLaughlin E, Harrison-Felix C, Whiteneck G, Gerber D, Morey C, Cusick C view full
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Lead Center: Craig Hospital
Modafinil for the Treatment of Fatigue and Excessive Daytime Sleepiness in Individuals with Traumatic Brain Injury
Abstract: It is estimated that there are 5.3 million Americans living with a traumatic brain injury (TBI) related disability today. Fatigue and excessive daytime sleepiness appear to be common problems reported by individuals who have sustained TBI. These symptoms have a detrimental effect on all aspects of a person.s daily life. Modafinil is an FDA-approved wakefulness promoting agent for individuals with excessive daytime sleepiness associated with narcolepsy. It has also been found to be effective in reducing fatigue and sleepiness in persons with multiple sclerosis, fibromyalgia, Parkinson.s disease and depression. Some evidence suggests that if Modafinil is effective in reducing fatigue and sleepiness that this may lead to improved... more
Investigators: Weintraub A, Harrison-Felix C, Morey C, Jha A, Whiteneck G view full
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Lead Center: Craig Hospital
Systematic Bias in Long-Term Outcome Studies due to Loss to Follow-up
Abstract: Three longitudinal databases have been analyzed using parallel procedures. "Lost" subjects were defined as those who were eligible for follow-up but no information was collected from the person with TBI, or a proxy, for any reason (e.g. refused, expired, no response to contact, unable to be interviewed). Each database was analyzed separately for each follow-up year. Univariate analysis were first conducted to identify all variables in each dataset for which there was a difference (p... more
Investigators: Corrigan J, Harrison-Felix C, Bogner J, Dijkers M, Whiteneck G, Terrill M view full
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Lead Center: Ohio State University
Outcomes and Environmental Factors in the Decades After Traumatic Brain Injury
Abstract: While the TBI Model Systems Database has documented many of the important outcomes occurring after Traumatic Brain Injury (TBI), it is only beginning to document truly long-term outcomes. As stated in NIDRR.s Long Range Plan, the Maintenance of Health and Function and Full Access to Community Life are key outcomes of interest with particular objectives to .identify predictors of community participation. and .examine the impact of environment and attitudinal barriers on the outcomes of individuals with TBI.. This study is designed to take advantage of Craig Hospital.s four decade history of rehabilitating people with TBI, to allow a cross-sectional analysis of the changing pattern of TBI outcomes and environmental barriers occurring... more
Investigators: Whiteneck G, Brooks C, Harrison-Felix C, Gerhart K view full
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Lead Center: Craig Hospital
Service Utilization, Cost, and Payor Source for Individuals with Traumatic Brain Injury in the Year Following Initial Inpatient Rehabilitation
Abstract: Objectives: To determine service utilization, costs, and payor source associated with traumatic brain injury one-year post discharge from initial rehabilitation.
Design: cost analysis of a representative cohort.
Setting: A rehabilitation hospital and community during the first year post discharge from initial rehabilitation.
Participants: 60 participants who sustained a TBI and who had an inpatient rehabilitation hospitalization.
Interventions: Not applicable.
Main Outcome Measures: Included itemized billing records of services received during inpatient rehabilitation up to one year post discharge from rehabilitation.
Results: The average per person charges totaled $40,348 in the first year post inpatient rehabilitation discharge. ... more
Investigators: Whiteneck G, Terrill M, Brooks C, Harrison-Felix C, Manley S view full
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Lead Center: Craig Hospital
A Collaborative National Information Center on Outcome Measurement in Brain Injury
Abstract: In order to better serve the rehabilitation community, the Center on Outcome Measurement in Brain Injury (COMBI) website and newsletter are proposed. The COMBI provides information on measures in a format that is easily accessed and understood, free of charge, objective, and comprehensive. Each measure will have online syllabi, training and testing materials (including the measure's rating form), information on scale properties, a reference listing of published studies using the measure, and a section for "Frequently Asked Questions."... more
Investigators: Bushnik T, Wright J, Mellick D, Harrison-Felix C, Boake C, Sander A, Malec J, Sherer M, Thompson R, Novack T, Dijkers M, Bogner J, Corrigan J, Hammond F, Kreutzer J, Marwitz J, Millis S, O'Neil-Pirozzi T view full
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Lead Center: Santa Clara Valley Medical Center
Collaborating Centers: Craig Hospital, The Institute for Rehabilitation and Research, Mayo Medical Center, Methodist Rehabilitation Center, University of Alabama, Rehabilitation Institute of Michigan, Ohio State University, Carolinas Rehabilitation, Virginia Commonwealth University/Medical College of Virginia, Moss Rehabilitation Research Institute, Kessler Medical Rehabilitation Research and Education Corporation, Spaulding Rehabilitation Hospital, Mount Sinai School of Medicine
Social Communication Skills Training in Traumatic Brain Injury: A Treatment Efficacy Study
Abstract: This study is evaluating the efficacy of a treatment program addressing social communication skills following TBI. Social communication skills are frequently impaired after a TBI, and these impairments are believed to contribute to social isolation due to difficulty in establishing and maintaining interpersonal relationships with friends, family and co-workers. Research suggests that social communication skills for individuals with TBI can be relearned through practice and repetition in functional situations. Most of the reported research in this area has been conducted using small sample sizes, with very limited use of randomized controlled studies. The actual treatment intervention for social skills used in these studies is most... more
Investigators: Dahlberg C, Newman J, Hawley L, Morey C, Harrison-Felix C, Whiteneck G view full
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Lead Center: Craig Hospital
Outcomes of Patients with Both Spinal Cord Injury and Traumatic Brain Injury
Abstract: This study will evaluate the outcomes of people who have both spinal cord injury (SCI) and traumatic brain injury (TBI). The TBI Model Systems (TBIMS) National Database includes spinal cord injury as a variable. A number of centers hold both SCI and TBIMS grants from NIDRR, allowing for the identification of subjects that are enrolled in both. Level of injury and ASIA classification can therefore be obtained from the SCI Model Systems database, while severity of TBI can be determined from the TBI Model Systems database. Thus, the influence of severity of SCI and TBI, as well as other known predictors as age, education, and employment can be assessed with respect to outcome variables such as FIM, DRS, CHART, CHIEF, and CIQ.

The analysis... more
Investigators: Glenn M, Williams S, Karpakjian C, Richards S, Bushnik T, Goldstein R, Harrison-Felix C, Hanks R, Hammond F, Bell K, High Jr. W view full
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Lead Center: Spaulding Rehabilitation Hospital
Family Members' and Caregivers' Emotional Well Being
Abstract: Objectives for this collaborative project include: (1) to examine the frequency and magnitude of emotional distress and depressive symptoms and the level of life satisfaction of family members and non-family caregivers as compared to clinical and non-clinical populations, and (2) to identify the relationships between caregivers' well-being and survivors' injury severity and level of functioning. Six TBI Model System centers are collecting data from family members, significant others, and friends of individuals in the National Database at either 1, 2, or 5 year follow-up. Data is collected from each caregiver only once. Measures include the Neurobehavioral Functioning Inventory (NFI) Depression subscale, the Brief Symptom Inventory-18... more
Investigators: Kreutzer J, Marwitz J, Rapport L, Koviak C, Hammond F, Morita C, Hart T, Selleck E, Glenn M, Harrison-Felix C view full
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Lead Center: Virginia Commonwealth University/Medical College of Virginia
Collaborating Centers: Spaulding Rehabilitation Hospital, Rehabilitation Institute of Michigan, Carolinas Rehabilitation, Moss Rehabilitation Research Institute, Craig Hospital



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