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Projects of the TBINDC Registry by Researchers Last Name
Community Outcomes Following Traumatic Brain Injury: Impact of Race and Pre-Injury Status
Abstract: Objective: To investigate the contribution of pre-injury differences and potential biases in outcome measurement in explaining outcome differences between white and African-American persons with moderate
and severe traumatic brain injury (TBI).

Design: Prospective, two group longitudinal study with retrospective self-assessment of pre-injury status.

Setting: Inpatient and outpatient TBI rehabilitation program.

Participants: 94 persons with moderate and severe TBI (55 white, 39
African-American) who provided data on both pre-injury status and 1-year outcome.

Measures: Community Integration Questionnaire, Aggression and Depression subscales of Neurobehavioral Functioning Inventory-Revised,
Satisfaction With Life Scale, other... more
Investigators: Hart T, Whyte J, Polansky M, Kersey-Matusiak G, Fidler-Sheppard R view full
details
Lead Center: Moss Rehabilitation Research Institute
Comparing electronic and paper strategies for enhancing goal-related behavior after TBI using self-cueing: A randomized controlled trial.
Abstract: The ability to formulate and carry out goals and intentions is impaired in TBI due to characteristic difficulties with memory, attention and executive function. Difficulties inhibiting socially inappropriate or unsafe behaviors may also interfere with the attainment of personal goals and increase the affected person.s dependence on others. The current study extends a line of research in which use of hand-held electronic devices was shown to enhance memory for therapy goals at the verbal level. The current project, which incorporated extensive consumer input in the planning process, uses Goal Attainment Scaling and objective behavioral monitoring to assess the efficacy of the electronic strategy compared to traditional paper-and-pencil... more
Investigators: Hart T, DiPasquale M, Whyte J view full
details
Lead Center: Moss Rehabilitation Research Institute
Blame Attribution in Violent and Non-Violent TBI: Effects on Psychosocial Adjustment
Abstract: Violence is a significant cause of TBI, especially in urban areas. In other populations, violence-related injury has been studied with respect to blame attribution. Previous work suggests that self-blame may be associated with better coping and more favorable outcome compared to blame of other persons. Those with TBI due to violence may therefore be at risk for worse psychological outcomes. In this project we are measuring blame attribution in the acute stages of both violent and non-violent injury and again at 1-year follow-up, along with outcome assessment, to determine the effects of blame attribution on psychosocial outcome. In the first phase of the study we demonstrated that blame attribution is reliable and valid in persons with... more
Investigators: Hart T, Bogner J, Whyte J, Polansky M, Hanks R, Esselman P view full
details
Lead Center: Moss Rehabilitation Research Institute
Collaborating Centers: Ohio State University, University of Washington, Rehabilitation Institute of Michigan
Characterizing and testing the relative efficacy of vocational rehabilitation interventions after TBI - Phase 1: Characterizing and measuring variations in vocational treatments across the TBIMS
Abstract: The ability to work is important to many persons with TBI for maximizing financial independence, achieving social re-integration and maintaining quality of life. Vocational re-entry is frequently addressed in post-acute rehabilitation of TBI, but employment remains a goal that is difficult to attain. We need ways of evaluating what the most critical elements of the treatment are, or at what intensity or duration they must be delivered. The objectives of Phase 1 are: (1) to develop definitions for content and process parameters for characterizing specific vocational interventions for TBI; (2) to use these definitions to survey the types and variations in vocational services across the TBIMS; (3) to develop testable hypotheses about... more
Investigators: Hart T, Dijkers M, Fraser R, Bogner J, Cicerone K, Malec J view full
details
Lead Center: Moss Rehabilitation Research Institute
Collaborating Centers: Mayo Medical Center, Kessler Medical Rehabilitation Research and Education Corporation, Ohio State University, University of Washington, Mount Sinai School of Medicine
Collaborative Study of Impaired Self-awareness after Traumatic Brain Injury (CSISATBI)
Abstract: The CSISATBI conducted the first large-scale, prospective longitudinal study of impaired self-awareness' (ISA) neural substrates, neuropsychological features, natural history, and relationship to functional and quality-of-life outcomes over the first year following moderate to severe TBI. Extensive data on self-awareness, injury characteristics, neuropsychological status, and various outcomes were collected on 177 persons with TBI. Three papers have already been published and additional papers are in progress. Findings published to this point show that impaired self-awareness is common after TBI and is a significant factor in influencing outcome from TBI. ... more
Investigators: Sherer M, Hart T, Thompson R, Whyte J, Yablon S view full
details
Lead Center: Methodist Rehabilitation Center
Collaborating Centers: Moss Rehabilitation Research Institute
Impact of service availability on functional outcome: qualitative analysis of transition points in the model system of care
Abstract: The impact of third party payers on health care service delivery, especially with the rapid growth of managed care in the 1990s, is a subject of regular comment and lament among providers as insurers continue to ratchet down reimbursable charges. For TBI, insurance companies increasingly question the value of certain kinds of treatment, e.g. cognitive remediation. Decisions about treatment for individuals with TBI are being made by insurers as well as, or instead of, clinicians to a greater extent than ever before.Studying the impact of variations in service availability is exceedingly difficult, since those who receive a given service typically differ from those who do not (e.g., in premorbid employment, education, and other factors that... more
Investigators: Burke J, Hart T, Fitzpatrick-DeSalme E, Whyte J view full
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Lead Center: Moss Rehabilitation Research Institute
Validation of the Moss Attention Rating Scale (MARS)
Abstract: Previous research has suggested that the MARS represents a unitary dimension, and that inter-rater agreement between occupational and physical therapists is good. This projects seeks to extend these findings by examining inter-rater agreement among additional rehabilitation therapy disciplines. In addition, the MARS will be validated by examining its correlation with a set of neuropsychological measures sensitive to attention, by assessing change in scores between inpatient rehabilitation admission and discharge, and by assessing its responsiveness to methylphenidate treatment.... more
Investigators: Whyte J, Hart T view full
details
Lead Center: Moss Rehabilitation Research Institute
Internet Strategies for Facilitating Social Integration After TBI: Resources and Potentials
Abstract: This is a 2-part project. In Part 1, Clubhouse members with TBI worked using a Participatory Action strategy to compile annotated lists and ratings of websites relevant to TBI consumer needs. In Part 2, 80 persons with moderate to severe TBI were interviewed in depth as to their interest in, use of, and problems associated with internet resources, as well as their wishes for training or facilitation in using the internet. Results of this partly qualitative, partly quantitative investigation are currently being prepared for publication.... more
Investigators: Vaccaro M, Hart T, Whyte J view full
details
Lead Center: Moss Rehabilitation Research Institute
The Effect of Scheduled Telephone Intervention on Outcomes After Traumatic Brain Injury: A Multi-Center Randomized Controlled Trial
Abstract: The University of Washington is the lead center in an innovative, three-site TBI telephone intervention funded by the National Institute on Disability and Rehabilitation Research. The study is being carried out here as well as at two other Model Systems Centers across the country: Moss Rehabilitation Research Institute in Philadelphia, Pennsylvania and Methodist Rehabilitation, in Jackson, Mississippi.

The aim of the study is to evaluate the effect of a low-cost phone intervention for persons with moderate to severe TBI in such areas as community integration and employment at one and two years after injury. Participation in the study will be offered to individuals with TBIs who are receiving inpatient rehabilitation services at... more
Investigators: Bell K, Dikmen S, Temkin N, Fraser R, Brockway J, Hart T, Whyte J, Sherer M view full
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Lead Center: University of Washington
Collaborating Centers: Moss Rehabilitation Research Institute, Methodist Rehabilitation Center
Family Members' and Caregivers' Emotional Well Being
Abstract: Objectives for this collaborative project include: (1) to examine the frequency and magnitude of emotional distress and depressive symptoms and the level of life satisfaction of family members and non-family caregivers as compared to clinical and non-clinical populations, and (2) to identify the relationships between caregivers' well-being and survivors' injury severity and level of functioning. Six TBI Model System centers are collecting data from family members, significant others, and friends of individuals in the National Database at either 1, 2, or 5 year follow-up. Data is collected from each caregiver only once. Measures include the Neurobehavioral Functioning Inventory (NFI) Depression subscale, the Brief Symptom Inventory-18... more
Investigators: Kreutzer J, Marwitz J, Rapport L, Koviak C, Hammond F, Morita C, Hart T, Selleck E, Glenn M, Harrison-Felix C view full
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Lead Center: Virginia Commonwealth University/Medical College of Virginia
Collaborating Centers: Spaulding Rehabilitation Hospital, Rehabilitation Institute of Michigan, Carolinas Rehabilitation, Moss Rehabilitation Research Institute, Craig Hospital
Development of Participation Measures for People with Traumatic Brain Injury
Abstract: There is no general agreement in the field regarding a reliable and valid objective measure of community participation after TBI. This study will use a multi-center, prospective, cohort design to evaluate participation items pooled from four currently used tools: the Craig Handicap Assessment and Reporting Technique Short Form (CHART-SF); the Community Integration Questionnaire Version 2 (CIQ-2); the Participation Objective-Participation Subjective (PO-PS) section of the Living Life After TBI (LLATBI); and the Mayo-Portland Participation Index (M2PI). The primary objectives of this study are to: 1) evaluate internal consistency, concurrent validity, and item/scale structure of current measures of community participation after TBI; and 2)... more
Investigators: Whiteneck G, Bushnik T, Cicerone K, Corrigan J, Bogner J, Dijkers M, Gordon W, Hart T, Malec J, Novack T view full
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Lead Center: Craig Hospital
Collaborating Centers: University of Alabama, Santa Clara Valley Medical Center, Mayo Medical Center, Kessler Medical Rehabilitation Research and Education Corporation, Mount Sinai School of Medicine, Ohio State University, Moss Rehabilitation Research Institute


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