GLASGOW OUTCOME SCALE - EXTENDED
Variable 296
date of last revision: 01/01/05
DEFINITION:
The Glasgow Outcome Scale-Extended is given at the time of follow up evaluation. For information about the GOS-E, see: Introduction to the GOS-E (COMBI) (http://tbims.org/combi/gose/index.html). For coding instructions, see: 28a.Instructions for Rating GOS-E in Appendix O.

CODE:
Total score:
1 DEAD
2 VEGETATIVE STATE
3 LOWER SEVERE DISABILITY
4 UPPER SEVERE DISABILITY
5 LOWER MODERATE DISABILITY
6 UPPER MODERATE DISABILITY
7 LOWER GOOD RECOVERY
8 UPPER GOOD RECOVERY
9 UNKNOWN
0 VARIABLE DID NOT EXIST

Subscores:
Scores for 1,2a,2b,2c,3a,3b,4a,4b,5a,6a,6c,7a,7c,8a:
1 NO
2 YES
8 N/A-deceased
9 UNKNOWN

Scores for 5b:
1 Reduced work capacity
2 Able to work only in a sheltered workshop or non-competitive job, or currently unable to work
9 Unknown

Scores for 6b:
1 Participate a bit less: at least half as often as before injury
2 Participate much less: less than half as often
3 Unable to participate: rarely, if ever, take part
9 Unknown

Scores for 7b:
1 Occasionally - less than weekly
2 Frequent or constant - once a week or more but tolerable
3 Constant - daily and intolerable
9 Unknown
CHARACTERS:
1 numeric
NOTE:
Every effort should be made to obtain the GOS-E assessment, however, if it can not be assessed, use code 9. Do not leave blank.

Collect and record all subscale scores unless instructed to skip some of them by the skip instructions on the Form II.

*For scoring instructions if any subscale items are "unknown", see Appendix 28b

GOS-E is a "best source" variable. Not necessary to ask the 2 "supplemental" questions about seizures and source of
disability (not present on data collection form).

DATA ENTRY: Enter into the database all subscale scores that do not autofill. For each case that you enter, check to be sure that the autofilled total score in the database is the same as the total score that has been recorded on the Form II. Notify your Data Manager of any discrepancies.

DATA MANAGERS: If errors in calculating the total score turn up on the Form II, provide your data collector(s) with more training in scoring the GOS-E and in calculating the total score. Contact the TBINDC if you have questions.



For additional information about the GOS-E see:

Frequently Asked Questions for GOS-E (COMBI) (http://www.tbims.org/combi/gose/gosefaq.html)

Properties of the GOS-E instrument (COMBI) (http://www.tbims.org/combi/gose/goseprop.html)


SOURCE:
JT Wilson, L Pettigrew, G Teasdale. Structured Interviews for the Glasgow Outcome Scale and the Extended Glasgow Outcome Scale: Guidelines for their use. Journal of Neurotrauma, Vol. 15 No. 8, 1998. For an abstract of this article, see: PubMed link: JT Wilson, et. atl. (1998) (http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=9726257)

For additional references, see: GOS-E References (COMBI) (http://www.tbims.org/combi/gose/goseref.html)
EXAMPLE:
Patient has constant, daily childish psychological problems.

5 (Lower Moderate Disability)
QUESTIONS & ANSWERS:
QUESTION: In the GOS-E, if one or more items are "9=unknown", should the overall score be "9=unknown"? 
ANSWER: Not necessarily. The hierarchical nature of the GOS-E items causes lower items in the scale to not contribute to the overall score if the person is able to perform the task described by a higher item. For more information see the email sent 10/12/2004, which will be added to the syllabus as a NOTE on 1/1/2005.   (10-12-2004)
QUESTION: It would be good if you could recreate the coding as in 8.1, because it's very useful for checking the accuracy with which data collectors assign the overall score. 
ANSWER: That has been added to the data entry screens as a check on the accuracy of data collector's calculation of the overall score.   (03-31-2004)

Traumatic Brain Injury Model System National Database Live Syllabus V10.3
Monday, September 25, 2006 10:31am  .   comments/questions?
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