DEFINITION:
The purpose of this variable is to help determine the preinjury functional level of the Model System participant. This variable was taken from the wording of the Long Form of the 2000 Census, which asks about current function. To meet our needs, this question was revised to ask specifically about the patient's difficulty in doing the following activities due to a physical, mental, or emotional condition that has been present for at least 6 months:
a. Learning, remembering, or concentrating
b. Dressing, bathing, or getting around inside the home
c. Going outside the home alone to shop or visit a doctor's office
d. Working at a job or business
CODE:
1 No
2 Yes
6 Variable did not exist at time of data collection
9 Unknown
NOTE:
Variable was successfully pilot tested in first quarter 2005.
Include effects due to alcoholism.
If respondent asks for clarification of what is meant by "mental and emotional conditions", the following explanation is acceptable: "Mental conditions affect a person's ability to think or their intelligence. Examples include learning disabilities, dementia, or mental retardation. Emotional conditions refer to psychological or psychiatric problems."
*If the participant was not working at the time of injury, code 123d on the basis of estimated difficulty had he/she been working.
SOURCE:
Questions were taken from the long form of the 2000 census and modified to ask about premorbid function instead of current level of function. (Developed by a group headed by Flora Hammond.)
EXAMPLE:
Participant had attention deficit disorder (diagnosed by psychologist) prior to the injury.
a. 2
b. 1
c. 1
d. 1
QUESTIONS & ANSWERS:
QUESTION: How should 123d be coded for participants who at the time of injury were retired due to age ?
ANSWER: Probe to determine if at the time of injury they had physical, mental, or emotional problems that--if they had been working--would have caused them difficulty and which they had had for the past 6 months. (03-14-2006)
QUESTION: How should 123d be coded if the person was not working at the time of injury?
ANSWER: If the participant was not working at the time of injury, the data collector should probe to determine if the participant would have had difficulty if he/she were working. If the participant would have had difficulty, then determine if the difficulty would have been due to physical, mental, or emotional problems that had been present for at least 6 months. If the participant would have had difficulty and if the difficulty would have been due to physical, mental, or emotional problems that had been present for at least 6 months, then code 2=yes. Otherwise code 1=no. (03-14-2006)
Traumatic Brain Injury Model System National Database Live Syllabus V10.3
Monday, September 25, 2006 10:30am .
comments/questions?
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